Empowering Data-Driven Healthcare: A Formal Consent Framework Using FHIR
The talk will propose a novel approach utilising HL7 FHIR, a modern healthcare data exchange and interoperability standard, to support a computable format for informed consent in bioinformatics research. Showcasing how FHIR resources can support various consent elements, including data access permissions, sharing restrictions, participant rights, and obligations of providers and third parties, the session will conclude with a discussion about potential applications for BioData.pt research and explore how this method can contribute to ethical and efficient data management within the bioinformatics landscape.
Date & Time: November 25, 11:00
Where: Online and INESC Lisboa, room 09
Online participation: here
About INESC-ID
INESC-ID, “Instituto de Engenharia de Sistemas e Computadores: Investigação e Desenvolvimento em Lisboa” is a Research and Development and Innovation Organization (R&D+i) in the fields of Computer Science and Electrical and Computer Engineering. INESC-ID mission is to produce added value to people and society, supporting the response of public policies to scientific, health, environmental, cultural, social, economic and political challenges. INESC-ID promotes cooperation between academia and industry by addressing research on daily life issues, such as healthcare, space, mobility, agri-food, industry 4.0, and smart grids. This high level of knowledge transfer is achieved through both competitive research projects and direct contracted research. Public and private entities have therefore access to a pool of knowledge, resources and services provided through the unique competencies available at the institution.
INESC-ID is supported by:
